Wednesday, September 4

Not Our Doctor- follow up appointment

Unfortunately, we did not have a good appointment for Trace with the new endocrinologist. 

When Trevor spoke on the phone with her about the results he mentioned Tristian having similar results and discovered she hadn't even read Trace's file enough to know he had a brother with the same symptoms. Something I know was in the file because I had requested to be mailed the filed appointment summaries for the boys, and know that in each one our doctor would mention that they had a brother named T---- Zeiger being seen for similar symptoms. Trevor requested she review Tristian's situation before we met about Trace. She said she would. 

When we arrived at the appointment the doctor had two student doctors with her. She neither introduced them to us, had them introduce themselves or ask our permission for being present. We let this slide because we generally don't mind student doctors, although it would have been more comfortable knowing who they were. My initial thought was one was a nurse, but I believe both were student doctors now- although still not sure. During the appointment it became almost immediately obvious that not only had she not reviewed Tristian's case, but really Trace's either. Trevor and I (and our previous endocrinologist, which is where Trevor and I learned to feel this way) feel that family history and having a sibling with similar symptoms has a huge impact on how each individual case is treated and viewed. Further, the doctor seemed completely unaware of previous blood work done on Trace or the results and I had to supply his current bone age to her (during a time when she was telling us she didn't think we understood the situation- which is laughable when considering this is our second go round with a child dealing with this). Because of the small abnormality that showed on Trace's MRI the doctor wanted to immediately test blood-work for hormone secretions (which I feel is a good idea to double check again, also); however, the doctor seemed completely unaware we have had this blood-work done multiple times for both boys. Including for Trace just this summer- much less what the results were.

She was also unaware that previous blood-work had shown he did not have normal amounts of growth hormone in his system. At one point (and then three more times) she told us the growth stimulation test meant he was producing normal levels. Which is not what it means, it means he CAN produce normal levels in response to being injected with two medications that stimulate the body to release growth hormone. It does not mean his body is being stimulated to release growth hormone naturally or that he has normal levels of growth hormone active in his system. I felt like her saying this was a dumbing down attempt and an attempt to present the facts in a way so we would blindly go along with her. Thankfully our previous doctor was not like that (and I research everything) and we were already well aware of what the test tested. She hadn't even checked to see that the test was ordered not only because he was small; rather because, his blood-work had consistently been showing him to be secreting well below normal levels of growth hormone. Something Trevor and I feel a competent doctor would have looked into prior to this appointment. She didn't even know his age. She kept saying, "Well he's only 2" Trevor finally corrected her saying he was 3 and the doctor replied, "Well he was 2 when the test was done." Trevor and I just looked at each other and at this point didn't even bother to say, "No, he was 3 when the test was done." I think by then we both given up on this doctor working out.

With the abnormality she did not want to put Trace on growth hormone until we've monitored it for a bit. Which I agree with from my own research and expected going into the appointment. However, while trying to discuss our current options we both felt this doctor repeatedly jumped to conclusions about what Trevor and I would say. To the point we actually left before she had even examined Trace because we felt there was no chance of continuing with this doctor. She often answered questions as to what we should be doing by saying, "well not this----". As if she was positive of what we were asking to happen and were naturally wrong, never actually answering us as to what our options and possibilities were moving forward or what our current goal was. She would not listen to us and assumed we could not possibly understand the situation or results and that she did understand what we were trying trying to say, rather then hearing what we were asking. It was an extremely frustrating appointment and left both Trevor and I rather angry at the doctor for her condescending (I'm the smartest person in the room), jumping to conclusions about what she thought we wanted or were saying and not being even passingly familiar with our children's cases.

We have set up an appointment with another endocrinologist in the department. 

Dr. Blue is VERY missed!

2 comments:

  1. Dr. God strikes again.

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    1. Dr. God Syndrome with an unhealthy dose of unawareness. Unaware of the patient's age, unaware of previous blood-work, unaware of family history, unaware of a brother's case with similar symptoms(even after being asked ahead of time to review it) and completely unaware of what the patient's parents are saying.... seriously!?

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